Roll or Walk on with hope in your heart…!
It’s been 6 years, I cannot believe it’s been 6 years!! That I have been using a gait trainer to … Continue reading Roll or Walk on with hope in your heart…!
It’s been 6 years, I cannot believe it’s been 6 years!! That I have been using a gait trainer to … Continue reading Roll or Walk on with hope in your heart…!
So as time keeps rolling on we come to a major event in my life, and that was my 1st … Continue reading Rolling in the past – Oct 1995
On February 2023 marked a month to remember for the FA community! Skyclarys became the 1st FDA approved medication to … Continue reading Exciting news!
I started a new hobby in Nov which was coloring! I know several adults who have Coloring books with Skinny … Continue reading A new hobby with new memories!
MERRY CHRISTMAS, HAPPY NEW YR, and HAPPY VALENTINE’S DAY!! I feel bad for missing these important dates and the times … Continue reading Living Through The Big Days!
I cannot believe it has been since March that I last wrote to you! Just in time to say HAPPY … Continue reading Gobble on my peeps!
This (March) makes for the yr anniversary Christina and I have been going to the gym (Neuro Fitness foundation NFF) … Continue reading It could always be worse… Part 3
Getting my Botox on! In January 2022 I started getting Botox injections in my hands to help with the curling … Continue reading It Could Always Be Worse!! Part 2
It could always be worse seems to be a common phrase when dealing with the progression of my FA lately. … Continue reading It could always be worse!
I was so excited that I had to write and tell everyone that I got to use my gait trainer … Continue reading I was so excited!!
When I last wrote it was the end of Jan and my insurance had run out from seeing my Neuro … Continue reading My new routine!
Our Journey as Newbie Full-time RVers
Adulting with Friedreich's Ataxia
A glimpse into the world of the handicapable.
Where hope lives free...
photos by Nick Kaylor