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Adulting with Friedreich's Ataxia

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Tag: FA

Socs -The goal is to get and keep my grip on!

 Stream of Consciousness Saturday is “curl. Morning by morning as I would get ready for high school, early 90s, I … Continue reading Socs -The goal is to get and keep my grip on!

Still Rolling On!

So I am still rolling on! I have had several people write to me concern because they have not heard … Continue reading Still Rolling On!

Sharing a bond!

As I have said before that writing is very therapeutic for me! It is also that way for a good … Continue reading Sharing a bond!

Exciting news!

On February 2023 marked a month to remember for the FA community! Skyclarys became the 1st FDA approved medication to … Continue reading Exciting news!

Finding acceptance!

Continue reading Finding acceptance!

A new hobby with new memories!

I started a new hobby in Nov which was coloring! I know several adults who have Coloring books with Skinny … Continue reading A new hobby with new memories!

It could always be worse… Part 3

This (March) makes for the yr anniversary Christina and I have been going to the gym (Neuro Fitness foundation NFF) … Continue reading It could always be worse… Part 3

It Could Always Be Worse!! Part 2

Getting my Botox on! In January 2022 I started getting Botox injections in my hands to help with the curling … Continue reading It Could Always Be Worse!! Part 2

It could always be worse!

It could always be worse seems to be a common phrase when dealing with the progression of my FA lately. … Continue reading It could always be worse!

I was so excited!!

I was so excited that I had to write and tell everyone that I got to use my gait trainer … Continue reading I was so excited!!

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Rolling on...

Adulting with Friedreich's Ataxia

Quaint Revival

quirks, quips & photo clicks

Twisted Trunk Travels

Our Journey as Full-time RVers

Kimmy's Keto Patio

myhollydays

A glimpse into the world of the handicapable.

Camp Craig Allen Blog

Where hope lives free...

fotoNik

photos by Nick Kaylor

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