Socs -The goal is to get and keep my grip on!
Stream of Consciousness Saturday is “curl. Morning by morning as I would get ready for high school, early 90s, I … Continue reading Socs -The goal is to get and keep my grip on!
Stream of Consciousness Saturday is “curl. Morning by morning as I would get ready for high school, early 90s, I … Continue reading Socs -The goal is to get and keep my grip on!
So I am still rolling on! I have had several people write to me concern because they have not heard … Continue reading Still Rolling On!
As I have said before that writing is very therapeutic for me! It is also that way for a good … Continue reading Sharing a bond!
On February 2023 marked a month to remember for the FA community! Skyclarys became the 1st FDA approved medication to … Continue reading Exciting news!
I started a new hobby in Nov which was coloring! I know several adults who have Coloring books with Skinny … Continue reading A new hobby with new memories!
This (March) makes for the yr anniversary Christina and I have been going to the gym (Neuro Fitness foundation NFF) … Continue reading It could always be worse… Part 3
Getting my Botox on! In January 2022 I started getting Botox injections in my hands to help with the curling … Continue reading It Could Always Be Worse!! Part 2
It could always be worse seems to be a common phrase when dealing with the progression of my FA lately. … Continue reading It could always be worse!
I was so excited that I had to write and tell everyone that I got to use my gait trainer … Continue reading I was so excited!!
Adulting with Friedreich's Ataxia
quirks, quips & photo clicks
Our Journey as Full-time RVers
A glimpse into the world of the handicapable.
Where hope lives free...
photos by Nick Kaylor